Asylum Medicine: A Call to Respond

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Asylum Medicine: A Call to Respond

May 20, 2019 by Hope Ferdowsian

Over the past year, the subject of migration has rarely left the headlines. But relatively little of the media coverage has had the substance it merits – particularly on the issue of asylum. We’ve been immersed in a political back and forth that too often ignores the lives of those caught in the middle.

I still vividly remember the first asylum seeker I met as a physician. At the time, I was a volunteer for Doctors of the World-USA (now HealthRight International), a program that trains doctors on how to conduct forensic medical and psychiatric examinations of asylum seekers with claims of torture or other forms of persecution. Through the organization, I learned about the man’s background before meeting him. He had been imprisoned and tortured after standing up for the rights of others in his home country. Soon after, he escaped and eventually made it to the United States to apply for asylum. Honestly, I cannot recall if he entered the country legally or illegally. It was irrelevant to my duties.

I was living in Brooklyn, New York, at the time and took the subway to a large hospital in Manhattan, where the man and I were scheduled to meet. We were both a little nervous, not knowing exactly what to expect. Determined to be thorough in my evaluation and documentation, the interview and physical examination took us hours to get through. He had numerous scars, and one scar on his abdomen was virtually diagnostic. The large scar took the shape of an object many of us use every day. His captors had burned him with it. Due to the burn, he had areas of skin where he could not feel the touch of a hand and other areas that were hypersensitive to light touch. Although I took forensic photographs for his attorney and the immigration judge, I would never need a picture to remind me of the burn’s semi-triangular shape and the mangled scar left behind. That scar and the man’s wounded face as he told me about how he was tortured are permanently etched in my memory.

After completing the asylum evaluation and providing a medicolegal report for the man’s attorney, I never saw him again. Much later, I was informed that he legally qualified for asylum, in part because of the report I provided. He would not be forced to return to a place where he would have likely suffered further persecution, including perhaps death. Nonetheless, I knew he would continue to be at risk for suffering from the psychological consequences of torture. What would he think of every time he saw that abdominal scar in the mirror? I hoped he would at least reflect on his courage and the way he rose up after incredible tragedy.

That first asylum evaluation was about 17 years ago. Since then, I’ve performed forensic medical and psychiatric evaluations of many other torture survivors seeking asylum and trained other healthcare professionals on how to do the same. Several years ago, with dear friends and colleagues, I helped launch an asylum medicine clinic in Washington, DC. And recently, two colleagues and I penned a paper on asylum medicine standards and best practices, hoping to stir further dialogue in this area. One of my coauthors, Amy Zeidan, is an emergency medicine physician who has conducted numerous asylum evaluations. Her first experience sitting in on an asylum evaluation took place when she was my medical student. During a recent training for other healthcare professionals, I was touched to hear her cite my words from years before – that practicing asylum medicine is one way a doctor can save a life. Just out of fellowship, she has already emerged as a leader in the field. We need so many more like her – and like my other coauthor, Katherine McKenzie, an internist who heads an asylum medicine clinic at Yale School of Medicine and trains medical students and residents on the forensic evaluation of asylum seekers.

Today, there are even more people seeking asylum in the United States and elsewhere than there were when I first began conducting asylum evaluations. Worldwide conflict and violence have driven global displacement to record numbers. In the United States, applications for political asylum have increased while the number of people granted asylum has decreased. The United States hosts far fewer asylum seekers and refugees than many other countries, including much poorer nations.

According to United States and international law, people have a legal right to seek asylum. And the bar is fairly high – in order to qualify for asylum, applicants need to show they have suffered or will likely suffer torture or other forms of persecution in their country of origin based on political opinion, race, religion, nationality, or membership in a social group. Since physicians and other healthcare professionals can document physical and mental evidence of torture, we have a critical role to play in the evaluation of people seeking asylum. Unfortunately, the demand for asylum evaluators currently far exceeds the number of doctors and other clinicians prepared to conduct forensic evaluations.

So, in an effort to bolster the number of qualified healthcare professionals who can conduct asylum evaluations, my two colleagues and I summarized standards and best practices in this emerging area of medicine. In press via Harvard’s Health and Human Rights Journal, the paper is open access for anyone who wants to read it or use it as a resource.

Even if you aren’t a healthcare professional, I hope you will take the time to review the paper and share it widely. At a time when more global citizens are at risk for torture and other human rights violations, it is critical that we set the facts straight about asylum law and asylum seekers. Perhaps you could better inform a family member, friend, colleague, or policymaker about the plight of asylum seekers. Or, if you have a doctor, perhaps you could gauge their interest in asylum medicine and point them to the paper to learn more.

With tremendous gratitude to the asylum seekers I have met over the years – including one man I met in New York 17 years ago – I have been humbled by their stories. They have taught me incredible lessons about adversity and what it takes to overcome our collective human history of violence. And they have deepened my sense of justice, patriotism, and compassion through their own.

Filed Under: All Blog Posts, Human Rights, Medicine and Public Health

A New, Objective & Boundless Ethic

April 16, 2019 by Hope Ferdowsian

This month marks the fortieth anniversary of the publication of the Belmont Report, a groundbreaking document written to protect children and adults from research abuses. Today, through its emphasis on informed consent and special protections for vulnerable individuals, the report’s reach and influence extends around the globe.

Recently, my colleagues and I penned a paper called “A Belmont Report for Animals?” asking the question of how principles that currently guide human research—such as respect for autonomy, obligations to avoid harm and promote justice, and special protections for vulnerable populations—could be applied to decisions about the treatment of animals. Under the current law, almost anything can be done to an animal in the name of research—primarily because they are seen as something rather than someone. Nonhuman animals of all species can still be subjected to the most severe forms of pain and suffering, without relief. This problem deserves particular reflection during the upcoming World Laboratory Animal Liberation Week beginning on April 22nd.

Although it could be easy to assume that the Belmont Report emerged without controversy, that is simply not the case for most achievements throughout history. One abuse after another—from torture to deceit—prompted the drafting of the Belmont Report. Throughout the twentieth century alone, researchers systematically targeted prisoners in Nazi concentration camps, African-American men living with syphilis in Tuskegee, Alabama, the Havasupai people living with diabetes in a remote part of the Grand Canyon, hospitalized children with cognitive disabilities, and many other individuals and communities. Only when people demanded and fought for change did such atrocities end.

Sadly many similar abuses continue today—and they are one of the many reasons that the time has come for a more honest evaluation of how humans treat other humans as well as how humans treat animals in society.

Our “A Belmont Report for Animals?” paper will be published later this year. But, in the meantime, as so many people and animals suffer around the globe, we are left with a clear mandate: We need a new, objective ethic—one that is principled, consistent, and inclusive. It is no coincidence that next week marks both Animal Cruelty and Human Violence Awareness Week. There are clear links between how we treat people and animals in society—connections that demand our focus and action.

Admittedly, it can be difficult to be mindful of the big picture, particularly when there are so many real and imagined distractions competing for our time and attention. But until we prioritize an objective ethic bound by key principles such as respect, compassion, and justice, we will continue to make ignorant, cruel decisions about the treatment of others. Arbitrary distinctions and values are responsible for the differential treatment of people and animals—whether in research or other areas of society. Bias and arbitrary distinctions also fuel prejudices such as ableism, classism, ethnocentrism, heterosexism, racism, and sexism. Unless we address one problem, we will not fully address the other. As Dr. Albert Schweitzer wrote, “[We] must oppose all cruel customs no matter how deeply rooted in tradition or surrounded by a halo. We need a boundless ethics which will include the animals also.”

With gratitude for the achievements that have been made, there is still so much left to be done. While we need to remain diligent about calling out and stopping abuses within research and other areas of society, we must also be forward thinking. We need to continually ask ourselves how we can ensure that such abuses never occur in the first place. Outside of an objective ethic, I can’t see how. Can you?

 

Filed Under: All Blog Posts, Animal Rights, Ethics, Medicine and Public Health Tagged With: animal rights, Belmont Report, human animal bond, human rights, research ethics

How Journalists, Artists & Physicians are Shaping the Healthcare Debate: The “SOME PEOPLE” (Every)Body Exhibition

September 24, 2018 by Hope Ferdowsian

Today, few issues are non-partisan. However, one subject that is becoming less partisan involves how people rate the quality of healthcare in the United States. Access to affordable, high-value healthcare matters to all individuals, though it touches some more intimately than others. In the first three months of 2018, more than 28 million children and adults were uninsured. Though that number has dropped by approximately 20 million since 2010, in large part due to the Affordable Care Act, problems with access to healthcare remain. About five percent of children between the ages of zero and seventeen—some of the most vulnerable individuals in society—remain uninsured, and far more are considered underinsured.

Even children and adults who are covered by private or public health insurance face difficulties accessing healthcare. The high cost of care, inadequate coverage, and lack of services or culturally competent care fuel disparities in access to healthcare. Access to healthcare frequently varies based on race, ethnicity, socioeconomic status, age, sex, disability status, sexual orientation, gender identity, and zip code. As a result, people often experience unmet health needs, delays in receiving appropriate care, inability to obtain preventive services, financial burdens, and preventable hospitalizations—all of which further increase healthcare costs.

As I’ve written before, going forward, it is important that we consider which principles should guide changes in healthcare policy. Based on the overwhelming evidence and experiences around the globe, it is clear that policies should reflect key values like equity, compassion, and solidarity, as well as a focus on prevention and evidence-based care. Together, we need to figure out how we can best translate these principles into action—begging the question of how we can improve dialogue around such an important topic.

Curator Kimberly J. Soenen and her colleagues have some ideas. Soenen is curating a multiplatform photography and art exhibition called “SOME PEOPLE” (Every)Body which reveals our universal vulnerability as it relates to the nation’s healthcare policy debate. The exhibition includes images, writings, and art of professional journalists, writers, artists, and healthcare providers. Comprised of a growing digital and soon-to-be live exhibition, select contributions are viewable on Instagram at @HealthOverProfit.

I had the privilege of contributing a brief piece, which tells the story of the included image here. As I note in my contribution to the exhibition, we need to confront key questions such as: “To what do we owe each other? Who is the ‘other’ or ‘some people’? and How can we nurture each other’s vulnerabilities rather than ignoring or exploiting them?”

As art often does, I suspect this exhibition will help us find answers to these and related questions. It will allow us to see the healthcare policy debate more clearly—both in terms of our vulnerable bodies and universal fragility and our potential for resilience.

Soenen aims to open the live exhibition in Chicago in 2019. She is working to engage patients, medical students, healthcare providers, policymakers, mental health professionals, members of the private health insurance industry, and other key stakeholders. News of the exhibition and related programming across the United States will be announced in the year ahead.

You can get involved! Crystal Hodges, a contributor to “SOME PEOPLE” (Every)Body, is creating an art installation that communicates the ways in which individuals suffer as a result of current practices within the United States private health insurance industry. Soenen is collecting correspondence from private health insurance companies to patients to be included in Hodges’ art installation. The installation will be unveiled on opening night in 2019.

If you would like to contribute a letter or multiple letters or documents concerning denial of a healthcare service, delays or restrictions in services, inflated costs, onerous bills, bankruptcy caused by medical bill debt or other challenges associated with healthcare delivery, send PDFs or scanned letters to Kimberly Soenen at:

[email protected]

Subject Line: DENIAL

*Letters will be reviewed and considered for inclusion. Retract the personal information you wish before submitting.

Because, in a debate that affects all of our lives and bodies, we all have something to contribute.

Follow “SOME PEOPLE” (Every)Body on Instagram @HealthOverProfit.

Filed Under: All Blog Posts, Human Rights, Medicine and Public Health

Conflicts of Interest in Government: Why We Should Care and What Can We Do

November 4, 2017 by Hope Ferdowsian

Just last week, the governor of Puerto Rico canceled a $300 million contract with a Montana-based firm that had promised to build a new power grid there. At the time the company was awarded the contract, it had only two full-time employees. Questions have been raised as to whether Department of Interior Secretary Ryan Zinke has connections to the firm, which is based in his hometown.

This isn’t the first time members of the Trump administration have been questioned about conflicts of interest. EPA Administrator Scott Pruitt has strong ties to the fossil fuel industry and sued the EPA multiple times before assuming his current position. Before Secretary of Health Tom Price resigned, he faced inquiries about how his private investments related to laws he introduced or cosponsored as a senator. The laws could have delayed or blocked Medicare payments to companies in which he had invested. More recently, Susan LaPierre – a senior National Rifle Association official who is also married to its top lobbyist – was appointed to the National Park Foundation Advisory Board, which influences park rules such as hunting regulations and environmental protections.

Sadly, the list doesn’t stop there.

In medicine, too, professionals and the public have paid increasing attention to conflicts of interest – like those Tom Price had as an orthopedic surgeon. Doctors are under increased scrutiny to avoid and disclose ties to the pharmaceutical and medical device industries. Medical journals require authors to disclose potential financial and personal conflicts of interest. Healthcare conference organizers are asked to address any conflicts of interest before including specific speakers in their program. Though there is much more that needs to be done in these areas (such as creating a better firewall between medical education and research and the pharmaceutical industry), the move toward greater transparency and the elimination of conflicts of interest signals a good trend in medicine. It ensures that doctors and other clinicians’ healthcare recommendations will better reflect the interests of their patients.

Shouldn’t we follow similar rules – to avoid conflicts of interest – when selecting policymakers who will influence the well-being of human populations, (nonhuman) animal populations, and the earth we all live on? Attention to each of these areas is critical, due to the many connections between human and animal health and the environment.

Conflicts of interest within government, especially those that fail to consider the shared interests of humans, animals, and the earth, aren’t new. For example, in prior administrations, agricultural secretaries have held interests in promoting the meat and dairy industry – a major threat to human health, animals, and the environment. Along with the Department of Health and Human Services, the Department of Agriculture is responsible for making national nutrition recommendations. Though Dietary Guidelines for America depend in part on science, the Secretary of Agriculture can choose to promote the goals of industry in lieu of the latest evidence on diet, nutrition, and health outcomes. The current Secretary of Agriculture, Sonny Perdue, has ties to a global agribusiness trading company and the beverage industry, so questions have already been raised about how his agency’s nutrition and agricultural policies will be tainted by his business relationships.

So what can we as individuals do about conflicts of interest within government, given the systemic nature of these issues? Here are a few ideas:

Participate as a Public Citizen

Public comments are commonly solicited during the rulemaking process, such as for the Dietary Guidelines for America, which are revised every five years.

More generally, the Office of the Federal Register has prepared a guide to the federal rulemaking process, which can be found here. You can submit statements on almost anything – and your comments matter. For example, public comments have helped enhance protections for kids and for chimpanzees.

Demand Transparency and Accountability

Let’s hold our elected representatives accountable. Here are some ways to do that:

You can follow your elected representatives’ voting patterns at sites like Politifact.com and GovTrack.us. Contact them when you like or don’t like something they’ve introduced, co-sponsored, or voted for.

Share America has some helpful tips to promote transparency – it is the US Department of State’s platform to spark discussion and debate on important topics like democracy, freedom of expression, and the role of civil society.

Until recently, the Office of Government Ethics was viewed as an independent body that could offer oversight of government agencies charged with meeting the needs of the public. Let’s demand that our lawmakers give the Office of Government Ethics the authority it should have.

Get Big Money Out of Politics

Citizens United and related court decisions have reshaped the business of politics. Corporations can now spend unlimited amounts of money on political activities – which can ultimately impact the air we breathe, the water we drink, and the health of our communities. There are ongoing efforts to overturn the Citizens United court decision.

Participate in Your Community

Closer to home, we can all participate in Town Halls and similar local events. These events take place in our shared public spaces and offer opportunities to communicate with public officials. It also helps to regularly call and write to elected officials. Don’t forget – they represent us.

Commit to the Long Haul

Our current dilemma will require years of work. Our kids need better lessons in civics – at a time when civics education is on the decline. From an early age, children need to learn about basic principles that are critical to democracy.

Conflicts of interest often clash with principles of democracy. Though we commonly refer to ideals like liberty and justice, we often fail to consistently apply them to our daily lives. Building these principles into our everyday decisions is key. My friend Marc Bekoff likes to say that we vote every day with our pocketbooks – whether our purchases relate to our plates, our clothes, our vehicles, or otherwise. Studies show that children and adults are more likely to adhere to principles such as freedom and justice when they are applied consistently and ubiquitously. And they are key to creating a healthier, more resilient society.

Are there any suggestions you’d add to this list? What do you do to address conflicts of interest in your daily life, at work, and elsewhere?

Filed Under: All Blog Posts, Animal Rights, Ethics, Human Rights, Medicine and Public Health

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